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Author Topic: Information Regarding Coping/Dealing with Chronic Pain  (Read 1613 times)

Rainbow

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Information Regarding Coping/Dealing with Chronic Pain
« on: June 03, 2009, 23:02:00 »

I know that some of this is old news but I thought some of you may want to read it.  I found it in some old links I had from research of my early CRPS days.

See pages 2 & 3 they speak of Non-Morphine medication and also radiofrequency ablation (which I have met I think one or 2 people on the boards who had good luck with their treatment of CRPS)

http://www.nyp.org/pdf/newsletter_neuro_fall2006.pdf

Hugs and Love
Rain
« Last Edit: April 30, 2010, 23:54:15 by Rainbow »
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Rainbow

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Re: Information Regarding Coping/Dealing with Chronic Pain
« Reply #1 on: June 03, 2009, 23:21:41 »

Here is an interesting article on journeling I came across in one of my health newsletters. And whilit is drected towards IBS sufferers, it has some good points that apply to any one oe that suffers from a chronic condition.

http://www.everydayhealth.com/publicsite/index.aspx?puid=0e34b391-5db7-4698-8466-da2a5cb20abe&p=18&xid=nl_EverydayHealthDigestiveHealth_20081001
« Last Edit: June 22, 2009, 00:50:40 by Rainbow »
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Rainbow

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Re: Information Regarding Coping/Dealing with Chronic Pain
« Reply #2 on: June 03, 2009, 23:22:14 »


Here is an interesting article on journeling I came across in one of my health newsletters. And whilit is drected towards IBS sufferers, it has some good points that apply to any one oe that suffers from a chronic condition.

http://www.everydayhealth.com/publicsite/index.aspx?puid=0e34b391-5db7-4698-8466-da2a5cb20abe&p=18&xid=nl_EverydayHealthDigestiveHealth_20081001


 :) Thank you Reta for the info,
 My Social Security Disabiity rep told me to keep a journal of my feelings, pain levels, and what I did to alleviate the symptoms. She told me that it was not only theraputic but could come in handy if for some reason I wasn't approved and needed to refer to my feelings and pain levels during follow up interview questions. And much to my surprise it helped me in coping, for this diagnosis hit me like a ton of bricks that just about took my legs out from under me. I have always been a very stable person and this just about ended the stability and made me question things that I had always taken for granted. I still read the entries perdiodically in reflection. Thank you again, for this is important for everyone. Be Blessed, gojogo
« Last Edit: June 22, 2009, 00:50:52 by Rainbow »
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Rainbow

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Re: Information Regarding Coping/Dealing with Chronic Pain
« Reply #3 on: June 24, 2009, 04:22:21 »

I am going to print this up for myself when I get some more ink for my printer, it's pretty neat.
http://www.painfoundation.org/page.asp?file=Publications/Target.htm

This site also has other good booklets with some good info that you can print up regarding pain:
http://www.painfoundation.org/page.asp?file=Publications/Index.htm
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Rainbow

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Re: Information Regarding Coping/Dealing with Chronic Pain
« Reply #4 on: June 24, 2009, 04:24:47 »

http://www.overcomingpain.com/10steps.html

Ten Steps To Overcoming Chronic Pain
 
by Mark Grant MA

Chronic pain is a serious problem but is often made worse by misinformation, negative attitudes and beliefs, outdated ideas, negative emotions. It is recognised that chronic pain is often mismanaged, not because we lack adequate treatments, but because of fear and ignorance. These steps are designed to help you mentally cope with chronic pain in the best way possible.

1. Make sure you understand what kind of a problem pain really is.
Chronic pain is different to other medical problems, which can often be treated relatively easily and successfully. Chronic pain is a complex illness, caused and maintained by a combination of physical, psychological and neurological factors.

These multiple causes make it difficult to pinpoint any one cause for pain, or any one treatment. Pain is also often dismissed or poorly treated because of the 'baggage' of old ideas about pain - for example, pain where the physical cause is unknown is often undertreated. This is despite the fact that the role of neurological factors means pain can occur in the absence of external causes and that such pain should not be dismissed or considered abnormal.

The medical establishment has struggled to meet the challenge of pain, and now recognises that this problem cannot be overcome without combining input from other disciplines such as psychology and physical therapies. Pain is also a subjective experience which is impossible to accurately measure. Pain involves a range of emotional reactions including anxiety, fear and depression.

2. Acceptance
Chronic pain is so awful that sometimes it's easier to escape into wishing it had never happened, or hoping for a miracle cure. If persistent, these common reactions to pain can actually become a bit of a trap. You need to face the reality of what's happened, and find constructive ways of dealing with it.

Acceptance means more than just intellectually knowing that you have pain, it means actually allowing yourself to feel the anxiety, fear, anger and grief that go with pain. Acceptance is a process, which requires progressively acknowledging all your feelings, and getting your physical and emotional needs.

In order to accept and go through the negative emotions associated with chronic pain, you must have adequate safety and support. Safety means having adequate control over your pain through the right combination of medical, physical and psychological treatment inputs. Support means having adequate emotional support from family and friends giving you a feeling of containment and security.

The end product of acceptance is reduced pain, inner peace, less anxiety and better coping.

3. Take Control.
After many months or even years of pain and failed treatments, its easy to slip into feeling hopeless and that nothing can be done. Pain sufferers are often the butt of negative treatment and it's easy to end up feeling angry and victimized. They often have some justification for feeling this way.

Maybe you didn't cause the pain, and maybe you aren't happy with some aspects of your treatment, but guess what? - life isn't fair. Blaming others for your problems, however well-justified, turns you into a victim and is like giving away control of your life. You are allowing yourself to be led by your emotions, but you do have a choice. Take the easy path (which isn't really so easy) and simply blame others, or take control and get information, communicate assertively with your doctor, practicing pain-management strategies such as regular exercise, pacing and relaxation and stress-management.

You need to decide whether you want to be a victim or a survivor, a passenger or a driver. Your pain is no-one else's problem but your own. You do have rights and even responsibilities as a health consumer and a patient. Because chronic pain is difficult to detect or measure, you need to be an informed, active participant in your treatment.

Don't be afraid to ask questions, don't be afraid to tell the doctor what you think and what you want, don't be afraid to ask for stronger pain relief.

4. Have a good working relationship with your doctor.
An open and trusting relationship with your doctor is essential. This means being able to tell your doctor how you feel, ask questions and feel listened to and understood.

The doctor-patient relationship must be a two-way street. Although you rely on your doctor's "expert" opinion for treatment advice, he depends on you for accurate information on which to base his decisions. It is your responsibility to describe your symptoms as accurately as possible and to report back regarding treatment outcomes, even if unfavourable.

Under-reporting of pain has been identified as one of the biggest causes of mismanagement of pain. The doctor-patient relationship can be undermined by bad communication, ignorance, arrogance and fear. For example, many people are actually afraid to tell their doctor how they are feeling for fear of being labelled as weak or a complainer. Other patients report down-playing the severity of their pain because they don't want their doctor to feel like a failure!

You should feel that you can talk to your doctor, that he listens and respects you, and be satisfied that he is working competently and thoroughly on your behalf. You also have a right to change doctors if you are dissatisfied.

5. Never ignore pain.
In the treatment of chronic pain it has become fashionable to recommend ignoring pain (after medical investigations are complete) in the belief that it is only pain and there is nothing physically wrong.

This approach represents a pendulum-swing away from the old fashioned notion of prescribing bed-rest in favour of maintaining activity. The idea is that inactivity only leads to depression and does not help the problem anyway.

However, with certain types of pain, this can lead to a cycle of aggravation, sleep deprivation, exhaustion and increased pain and suffering, particularly if you are someone who typically ignores pain (ignoring pain is of course, what causes most repetitive strain injuries).

The other problem with ignoring pain is that every time pain occurs, it leaves an imprint in your nervous system, a kind of 'pain memory'. These repetitive pain experiences lead to overstimulation of the nervous system and the generation of spontaneous pain signals, leading to a cycle of stress and pain. There are thus sound reasons for wanting to avoid pain, but again, total inactivity is not the answer. The best approach is a balanced one with paced activity levels and avoiding undue aggravation of the pain.

6. Have a balanced approach to physical activity.
It can be tempting to adopt a "do nothing" approach, in the hope that you may avoid further pain. As we have indicated, since chronic pain is partly caused by neurological changes, avoiding activity will not stop the pain. Avoiding activity also leads to muscle wasting and a build-up of waste-products in the tissues, which can actually exacerbate pain.

At other times, you may feel frustrated and force yourself to complete relatively major tasks (eg mowing the lawns) knowing that it will hurt later. This may cause you to have to take two days of bed rest to recover. This "all or nothing" approach is inappropriate and ineffective in the long run.

You need to pace activity levels. You can do this on your own, via "trial and error" or with a bit of 'coaching' in the form of professional help. The support and guidance of a sympathetic health professional is highly desirable to maintain motivation and deal with fears and obstacles along the way.

7. Sleep!
Loss of sleep caused by inadequately managed pain can lead to a cycle of fatigue, depression and irritability. Inability to sleep, or waking up feeling tired, are signs that your pain is not being managed properly. Developing a restful sleep pattern is essential to coping with chronic pain. Improving your sleep will give you more energy and help you feel more able to cope.

There are many things you can do to get better sleep including relaxing, perhaps by taking a hot bath, listening to music or playing a favourite relaxation tape before going to sleep; self-hypnosis; a good mattress; posture; medication; and good overall stress-management.

8. Make sure you have adequate support.
Many chronic pain sufferers become isolated, alienated from loved ones, their work-mates and society. Inadequate social or emotional support can lead to isolation, depression, and increased risk of suicide. People who normally pride themselves on being independent and not needing others are particularly 'at risk'.

Unfortunately, the negative reactions of others can discourage chronic pain sufferers from talking about their problems or seeking help. The unhelpful reactions of people you thought you could rely on can be very disappointing, it's another thing that falls into the 'life isn't fair' basket.

The reality is it's simply ridiculous to expect yourself to be able to cope on your own with a chronic illness that robs you of your ability to work love and play. Having adequate emotional support greatly increases your ability to cope.

Talking to close family and friends is vital. A family talk with your doctor of psychologist can also help by enabling them to learn more about your condition and talk about things in a neutral environment.

9. Don't expect people who don't have pain to understand what it's like.
It's frustrating, and easy to get angry when others don't seem to understand. However, because chronic pain sufferers often have no visible injury, it is easy for family and friends, and especially children, to forget there is anything wrong. They may also 'forget' because it is hard for them to have to live with the knowledge that a loved one is in pain.

So don't expect people who don't have pain to understand what it's like and be prepared to have to remind others about your limitations. Children especially cannot be expected to understand the implications of a condition like chronic pain. It's a lesson that has to be repeated many times.

10. Forgive yourself.
The lost ability to work, love and play caused by chronic pain can create feelings of guilt and failure. Become aware of your own expectations, and any feelings of shame or guilt and examine them critically. Chances are you didn't ask to be in pain.

Repressed feelings of shame lead to resentment and later emerge as anger. Feeling guilty can also be a subtle form of self-indulgence - when you engage in self-blame you are really wallowing in self-pity.

Forgiveness and letting go of guilt will be easier if you choose a proactive approach by adopting these 10 Steps.

This information is provided by Mark Grant to assist you to participate actively in your treatment and cope with chronic pain in the best way possible.
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Rainbow

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Re: Information Regarding Coping/Dealing with Chronic Pain
« Reply #5 on: June 28, 2009, 23:25:13 »

As RSDers, we all know that our memory has been affected adversely and the ability to stay focused has suffered as well. It has been confirmed that RSD mechanically affects the part of the brain that controls memory and makes recalling certain elements of our past difficult at best. But now there is evidence that the mere fact that you are in pain can adversely affect your ability to concentrate or hold that thought. I have added an article from the website www.biomedicine.org that informs of this from a clinical study. I know all you had to do is ask and we would or could have saved everyone a lot of trouble. So next time you just can't keep the mind on track, rest in that you are having difficulties from a couple of sources and smile and inform the questioner that you will have to get back with them, hehehe. Seriously I put this post together while in a full blown flare and have lost my train of thought a couple of times and so please don't hold me responsible for any spelling errors. We have difficulty enough living with an invisible disease and now there is confimation of yet another issue that negatively affects our attempts at mormalcy. Many blessings all, gojogo

Chronic pain not only affects to work, sleep and performance of other activities but as it turns out, it can also impair your memory and your concentration. 

This is the finding of a team of Drs. Bruce D. Dick and Saifudin Rashiq at the University of Alberta.


As a part study that was recently conducted at the university's Multidisciplinary pain Centre in Edmonton, Canada, the researchers studied 24 patients, two-thirds of whom showed significant disruption of attention and memory when tested.

Dr Dick and Dr Rashiq suggest that pain may disrupt the maintenance of the memory trace that is required to hold information for processing and retain it for storage in longer-term memory stores.

In other words, chronic pain can, quite literally, drive people to distraction.

Participants in the study all of whom had pain lasting six months or longer were given computerized tests of working memory and a neuropsychological test of attention on separate "pain" and "less pain" days.

On the "less pain" day, participants were tested after receiving a pain-reducing procedure as part of their ongoing treatment at the Centre. On the "pain" day, participants were tested without having received a pain-reducing procedure, when their pain was reported to be at a high level.

Sixteen participants a startling 67 percent showed clinical impairment due to pain on their pain testing day. The remaining eight participants, or 33 per cent, showed no clinical impairment due to pain.

And though the number of participants taking part in the study was small, the researchers insist that the statistically significant findings are "robust".

"Prevalence studies indicate that as much as 44 per cent of the population in Canada as well as in the U.S. and Europe experience pain on a regular basis, and that in approximately one-quarter of this group the pain is severe", said Dr Dick.

Their findings are published in the latest issue of Anesthesia and Analgesia.

Date:6/10/2007

www.bio-medicine.org/medicine-news/Chronic-Pain-can-Impair-Memory-and-Concentration-21632-1/
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Rainbow

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Re: Information Regarding Coping/Dealing with Chronic Pain
« Reply #6 on: July 07, 2009, 19:27:43 »

http://www.overcomingpain.com/10tips.html

    Ten Tips For Communicating With A Person Suffering From Chronic Pain

     by Mark Grant MA

    People with chronic pain communicate differently to well people. Tired, irritable and withdrawn, they are often reluctant or unable to talk about their feelings. Or they may talk in a kind of 'code' and tell you they feel fine when they are really hurting. Sometimes they just don't have the words to describe how they feel.

    These factors can create frustration and often lead to a breakdown in communication between the pain sufferer those whose mission it is to try and understand them.. The following 'communication tips' are designed to help you recognise and overcome the special obstacles that may occur when communicating with persons suffering from chronic pain or illness.

    1. Listen!

    To really listen is one of the most helpful things you can do for a person in pain. Listening also involves more than just hearing what is being said.

    A good listener listens with their heart as well as their ears. They are able to read between the lines and interpret unspoken non-verbal pain communications. To be a good listener you must focus your attention completely on the person you are communicating with, and listen to how they are saying it as well as what they are saying.

    Good listeners are also able to drop their own preconceptions and assumptions and adopt an attitude of genuine and profound curiosity. Repeating and summarizing what is said is also a skill associated with good listening.

    As Bernard Lown, MD and Nobel prize-winner, notes, 'the majority of people's complaints are relatively straightforward, detectable to the ear cultivated to listen for the inaudible sigh, visible to the eye sensitive to the unshed tear.'

    2. Don't Fake It.

    It can be unpleasant to listen to someone talk about their pain (imagine how it is for them!). Don't ask someone how they're feeling unless you're really prepared to listen. However, it's better to really listen for just five minutes than to pretend - you don't have to have all the answers. People can tell if you're not really interested and it makes them feel like they are a burden.

    3. Understand that pain sufferers may be afraid to say how they are feeling.

    Many chronic pain sufferers are silent about their pain because of fear of ridicule or a feeling of 'what's the point?' or just thinking that if they don't talk about it, maybe it will go away. Others understate their pain for similar reasons.

    Not expressing or underreporting pain are coping mechanisms which can be misleading to the unsuspecting. So when someone you suspect of being in pain says they feel fine, you can let them know that you're really interested, but you understand if they don't want to talk about it.

    4. Look for non-verbal cues.

    As indicated, chronic pain sufferers often underreport their pain, so look for a 'mismatch' between what is said and how they appear. Some tell-tale symptoms that usually indicate severe and inadequately controlled pain include sweating, irritability, sleep disturbance, restlessness, difficulty concentrating, decreased activity and suicidal thoughts.

    Many chronic pain sufferers are so accustomed to these negative feelings they do not recognise their significance and so don't volunteer this information unless specifically asked.

    5. Believe people when they say they are in pain.

    When pain sufferers complain about their pain, they are often not believed. There are many reasons for this including a myth that chronic pain sufferers exaggerate their pain in order to gain sympathy or avoid responsibilities.

    In general, people do not go around pretending they are in pain to get sympathy - research has shown that exaggerating or malingering are actually rare. Remember, "pain is whatever the experiencing person says it is, whenever the experiencing person says it does."

    6. Asking 'helpful' questions can stimulate hope.

    Helpful questions are specific or open-ended questions that convey you understand and are interested in what the pain sufferer is experiencing. For example, you can obtain a rough idea of how much pain they have by asking them to rate their pain on a scale of 0 to 10 where 0 = no pain and 10 = the worst possible pain. Other important areas to ask about include sleep, concentration, sweats, and mood (look for depression, irritability).

    It's also amazing how rarely chronic pain sufferers are ever asked directly how satisfied they are with their treatment, and whether or not they think their pain is bearable. Being asked the right questions also gives the pain sufferer permission to talk about their pain.

    7. Avoid "words that maim".

    Words are a powerful "two-edged sword" - they can maim or heal. Thoughtless throwaway lines such as "you'll just have to learn to live with it" or "you don't look sick" do nothing to help and make the sufferer feel worse.

    Elementary psychology teaches that fear is an improper way to motivate constructive behavior. Instead of mobilizing the sufferer's inner resources, such talk dissipates hope. Constructive, carefully chosen words, in the context of a caring relationship, can be a powerful activator of healing resources.

    Just asking someone who is feeling at the end of their tether "so how have you survived?" can evoke awareness of strengths and determination to survive.

    8. Have compassion.

    Try and put aside your cares and preoccupations even for just a few minutes and listen with an open heart. Compassion is known to be one of the most healing human emotions.

    As the essayist Anatole Broyard wrote "I wouldn't demand a lot of my doctor's time. I just wish he would brood on my situation for perhaps five minutes, that he would give me his whole mind just once, be bonded with me for a brief space, survey my soul as well as my flesh to get at my illness, for each man is ill in his own way. Without such recognition I am nothing but my illness."

    9. Be honest about the limitations of your own knowledge.

    IIt is difficult to see a person in pain and not know how to help them. Nobody likes to see someone suffer. It can be tempting to offer well-meaning advice such as "you'll just have to learn to live with it", which, however well-intended, is not actually very helpful.

    It is better to admit you don't know the answer rather than to say something which may unintentionally destroy hope.

    10. Remember, pain is not what you think it is.

    As you're probably aware, the concept of pain has undergone considerable revision in recent decades. Pain has gone from being thought of in purely physical terms to the realization that it is made up of physical, psychological and neurological factors. However, although it is over 30 years since the International Association for the Study of Pain officially declared that pain is both a mental and an emotional problem, many people still act as though pain can be understood simply as a sign of physical injury.

    For example, pain sufferers are often met with disbelief (even by trained medical professionals) because they do not have any visible injury. But as pain specialists now realize, the involvement of neurological factors explains why pain can occur in the absence of external causes. It also means that pain in the absence of external causes should not be considered abnormal.

    Pain is in part a psychological problem involving a range of emotions. The initial response to pain is fear, which is appropriate since pain represents a threat to identity and the ability to work, love and play. However, when pain persists, fear turns into anxiety and depression.

    The effect of depression is for people in pain to show less emotion, and thus to not appear as though they are in pain. Pain is also very difficult to convey in language, making it even harder to understand what the pain sufferer is experiencing. So to understand a person in pain you have to remember that pain is a highly complex and individual thing.

    The other thing to remember is that pain is different for everybody, depending on the personality and life history of the person experiencing it. Thus, you cannot know another person's pain.

    Mark Grant is a psychologist, specializing in the management of chronic pain and trauma. His advice is based on many years of clinical experience working with persons affected by chronic pain and trauma.

    Mark has also conducted research regarding a multi-modal approach to pain management. He is the author of two self-help tapes which use ac

    celerated learning principles for sufferers of chronic pain and stress: Calm and Confident based on EMDR and Pain Control, based on EMDR. He has also spoken at numerous international conferences and workshops about pain management.
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Rainbow

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Re: Information Regarding Coping/Dealing with Chronic Pain
« Reply #7 on: July 13, 2009, 00:13:14 »

I don't know how many of you read the American Pain Foundation Newsletter, this month has some really good articles in it.

http://by132w.bay132.mail.live.com/mail/InboxLight.aspx?FolderID=00000000-0000-0000-0000-000000000003&InboxSortAscending=False&InboxSortBy=Date&n=1545793583

Reta
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Rainbow

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Re: Information Regarding Coping/Dealing with Chronic Pain
« Reply #8 on: July 18, 2009, 01:16:42 »

I found this site called "The Brain Injury Resource." It has an interesting topic on pain analysis and mapping. This could be a useful tool to take to your PM. I will say that I could not access the anatomical chart through the link. there is a long list of words to help you describe your pain.

Instructions -- Pain Analysis And Mapping
 
1. Refer to an Anatomical Chart, list each different location of your pain.
2. For each location, indicate the date on which you first noticed the pain.
3. Pain description.  Use the list above to describe what your pain feels like.
4. Pain intensity. Use the intensity ratings scale above to rate your pain.
5. Overall interference of pain with life:
   
Work           School                                    Social Activities
Childcare     Relationships                           Sports and Exercise
Sex             Household responsibilities         Other

Refer to the intensity ratings scale above to rate this category.
   
6. Describe things that increase your pain such as physical activities.
7. Describe things that decrease your pain, such as lying down, heating pad, medication, etc.
   
http://www.headinjury.com/pain.htm

Reta
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Rainbow

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Re: Information Regarding Coping/Dealing with Chronic Pain
« Reply #9 on: July 18, 2009, 17:53:15 »

The pain blog is offering a coping with pain class and thought it would be nice for us to check the link each week and share our thoughts on how we can relate to it and incorporate in our lives.  The first link is listed below, let me know what you think.  Denise

http://www.howtocopewithpain.org/blog/

-----------------------------------------------------------------------
I am not sure of where the class is located, I looked at the site and saw the class mentioned, but not anything on any specifics pls advise.
Many blessings, gojogo.


Each week a link is sent and you just log on to read....I will post the link every week on here so no one has to remember where to go etc.... This week was on the stages of using pain techniques. Very interesting I thought and true to most.  Like I am always fluctuating between stage 5 and 6, and find I lose my motivation when my pain is at its worst....I am working on changing that because it is then that I need the techniques the most!!! :-\  Hoping we all gain something from reading this!  Denise
« Last Edit: July 18, 2009, 17:55:38 by Rainbow »
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Rainbow

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Re: Information Regarding Coping/Dealing with Chronic Pain
« Reply #10 on: July 24, 2009, 22:51:21 »

http://www.arachnoiditis.info/website_captures/chronicpainhandbook/Acceptance%20of%20Pain%20and%20Disability.htm

ACCEPTANCE OF PAIN AND DISABILITY

Richard W. Hanson, Ph.D.

While it is important to use problem-solving approaches whenever possible, we must also realize that there are many adverse situations and events in life that offer few if any opportunities for problem solving. Pain, suffering, disease, old age, and death are inevitable parts of human existence. No matter who we are, how healthy or physically fit we are, or how much money and power we have, we will all eventually die. Nothing can really prevent the physical aging process, erase unpleasant events that have already occurred, change who our parents and children are, alter our genetic make-up, or end reality of pain. For many, chronic pain and associated physical limitations are not so much problems to be solved (i.e., made to go away), but rather they are realities to be accepted. In fact, whenever you are faced with an unsolvable problem or an adverse situation that will never go away, you are forced to wrestle with the issue of acceptance.

Acceptance of pain and related problems is a significant stumbling block for many. This may be due to confusion and misunderstanding regarding the meaning of acceptance. First of all, I am not suggesting that you must accept needless suffering.  In particular, I see no need to accept having to live with constant severe pain.  Many pain medications are available which can lower your pain to a more tolerable level.  However, it may not be reasonable to expect that these drugs will make you totally pain free.  Therefore, acceptance does mean having to accept living with a certain amount of pain.   Second, acceptance does not mean that one has to give up all hope and feel defeated. Rather, one can maintain hope for a better future while accepting today's unpleasant realities. Third, acceptance does not mean that you have to accept someone else's version of your condition. For example, some pain patients have been given bleak prognoses by their doctor and subsequently proven the doctor wrong. Finally, acceptance has nothing to do with apathy and not caring. You don't have to like the situation you are in. Certainly you would prefer that things were different. Healthy acceptance means recognizing the futility of struggling against the unpleasant realities that are beyond your control. It means recognizing that no amount of agonizing over and bemoaning your fate is going to make things any better. True acceptance means coming to terms mentally and emotionally with your unpleasant reality. It means coming to peace with the adverse reality that you are currently facing. You can say to yourself, "I don't like having this chronic pain condition, but I'm going to do everything I can to make my life as best as I can despite the pain."

Healthy and peaceful acceptance of unpleasant realities like pain and disability is one of the most important things that you can do mentally to reduce stress and maintain peace of mind. Remember that acceptance is not a one-time decision. Rather, it is an ongoing process which must be re-experienced every day.

Acceptance as a Way of Coping with Pain

The tendency to fight and resist pain at a physical and mental level may seem like an automatic reflex process.  Unfortunately, the chronically elevated physical and mental tension that results from this ongoing struggle usually takes its toll on your body and mental functioning.  Muscles and joints become stiff and rigid.  Mentally and emotionally you become tense and irritable, or you simply become exhausted by the continual battle against the pain.

Acceptance as a coping method means learning to tune into your body and move your body while relaxing at the same time.  Techniques to accomplish this involve focused breathing awareness and passive body scan.  With practice you can learn to breathe into and through painful areas of your body, maintaining awareness of the relaxing breath while allowing pain sensations to ebb and flow in a non-judgmental manner.  Rather than labeling the sensations as bad and fighting against them, you simple note them, accept them, and return to your breathing meditation.  Likewise, you can learn to gradually and gently stretch your muscles and joints while maintaining the breathing awareness. Rather than trying to move or stretch while simultaneously tensing and contracting your muscles when you experience discomfort, you learn to remain mindful of the relaxing breath.  It becomes so much easier to stretch and move your body when you are relaxed and not fighting against yourself.

Spiritual Surrender

At a deeper level, acceptance may take the form of spiritual surrender. Throughout this manual and in the pain coping literature, emphasis is placed on finding ways to increase your control over pain. Nevertheless, it must be recognized that sometimes the more you struggle to control pain or other life difficulties, the more frustrated and discouraged you become. Spiritual surrender is a paradoxical approach to control that is recognized and advocated by nearly all the major world religions, including Christianity and Judaism. Spiritual surrender, which may be accompanied by a powerful and profound religious experience, involves relinquishing one's futile efforts to control unpleasant reality (adverse situations) by turning the situation over to God, higher power, or some other transcendent reality. This may be especially relevant when faced with personal crises that offer very few options for constructive problem solving. The concept of surrender is also repeatedly found in AA and other 12-step recover programs. For example, in the AA phrase "let go and let God" it is recommended that one "let go" of personal efforts to control use of alcohol or drugs and instead surrender by letting God or one's higher power take over one's life. The same process can apply to efforts to control chronic pain. Spiritual surrender, like acceptance, does not mean passive resignation or avoidance of personal responsibility. Rather, spiritual surrender is often associated with a experience of relief and peace of mind. Paradoxically, the increased clarity of thought that follows spiritual surrender can actually enhance your ability to cope with pain and other adverse situations in life.

In the process of surrendering, the person not only gives up futile efforts at control but often experiences profound peace of mind by realizing connection with a reality (God or higher power) that transcends one's personal self.  Even in a non-theistic religion like Zen Buddhism, true spiritual surrender is experienced as enlightenment. Surrender should not be seen as a one-time experience. Rather, surrender is typically associated with efforts to live one's life on a daily basis in accordance with one's concept of God, higher reality, or moral values. Furthermore, through practices such as prayer or mindfulness meditation, the process of surrender can be reinforced and renewed.

Aids to Acceptance of Unpleasant Reality - Reframe and Redirect

Reframing refers to altering the meaning of the negative reality in one's mind by casting it in a positive light or at least trying to find something positive about the situation. Extreme examples of attempts at reframing are sometimes found in people's response to the death of a loved one (e.g., "he is now freed from further suffering," or "she has gone to be with God"). Is there any way that you can reframe the meaning of your chronic pain condition or the fact that you have physical limitations?

Healthy acceptance also becomes easier as you redirect your efforts and energies to problems which can be solved. The key to acceptance, is to refocus on things you can do or situations where you do have some control. For example, you can tell yourself, "I can't eliminate the reality of my pain, but I can find ways to reduce its intensity or keep it from dominating my life." Another positive self-statement might be, "I can't eliminate the fact that I have certain physical limitations and can no longer do things the way I used to. However, I can make the most of all the physical capabilities that I do have and find ways to keep myself active."

Those of you who are spiritually inclined will find that the self-management approach to life problems is nicely summarized in the "The Serenity Prayer," the first verse of which is also frequently used in 12-step recovery programs. Although this prayer is commonly attributed to a theologian named Reinhold Niebuhr, Niebuhr himself reportedly gave credit to an 18th century theologian named Friedrich Oetinger. This prayer also captures the essence of spiritual surrender as discussed above.

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THE SERENITY PRAYER

God grant me the serenity to accept the things I cannot change,
the courage to change the things I can,
And the wisdom to know the difference.
Living one day at a time,
Enjoying one moment at a time,
Accepting hardship as a pathway to peace,
Taking this sinful world as it is,
Not as I would have it.
Trusting that you will make all things right
If I surrender to your will,
So that I may be reasonably happy in this life
And supremely happy with you forever in the next.
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Serenity (or peace of mind), courage, and wisdom are three extremely important ingredients for successful living. Fortunately it is possible to have all of these ingredients despite having a chronic pain condition. What is required, however, is a willingness to accept those aspects of your chronic pain condition which cannot be changed, and a continual effort to re-focus on those things which can be changed. The concept of serenity is discussed further in the final chapter of this Handbook.

In a preceding section, you were asked to select your personal self-management goals. These goals referred to things that can be changed. In the box below, try to list those unpleasant realities in your life which cannot be changed and which you need to work on accepting.

Unpleasant Realities That I Need to Work on Accepting
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Rainbow

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Re: Information Regarding Coping/Dealing with Chronic Pain
« Reply #11 on: July 24, 2009, 22:52:31 »

http://www.essortment.com/all/stagesofgri_rvkg.htm

Grief is a somewhat complicated and misunderstood emotion. Yet, grief is something that, unfortunately, we must all experience at some time or other. We will all inevitably experience loss. Whether it is a loss through death, divorce or some other loss, the stages of grieving are the same.

There are five stages of grief. If we get stuck in one stage or the other, the process of grieving is not complete, and cannot be complete. Thus there will be no healing. A person MUST go through the five stages to be well again, to heal. Not everyone goes through the stages at the same time. It is different for each person. You cannot force a person through the stages, they have to go at their own pace, and you may go one step forward then take two steps backward, but this is all part of the process, and individual to each person. But, as stressed, ALL five stages must be completed for healing to occur.

The five stages of grief are:

1-Denial-"this can't be happening to me", looking for the former spouse in familia places, or if it is death, setting the table for the person or acting as if they are still in living there. No crying. Not accepting or even acknowledging the loss.

2-Anger-"why me?", feelings of wanting to fight back or get even with spouse of divorce, for death, anger at the deceased, blaming them for leaving.

3-Bargaining-bargaining often takes place before the loss. Attempting to make deals with the spouse who is leaving, or attempting to make deals with God to stop or change the loss. Begging, wishing, praying for them to come back.

4-Depression-overwhelming feelings of hopelessness, frustration, bitterness, self pity, mourning loss of person as well as the hopes, dreams and plans for the future. Feeling lack of control, feeling numb. Perhaps feeling suicidal.

5-Acceptance-there is a difference between resignation and acceptance. You have to accept the loss, not just try to bear it quietly. Realization that it takes two to make or break a marriage. Realization that the person is gone (in death) that it is not their fault, they didn't leave you on purpose. (even in cases of suicide, often the deceased person, was not in their right frame of mind) Finding the good that can come out of the pain of loss, finding comfort and healing. Our goals turn toward personal growth. Stay with fond memories of person.

Get help. You will survive. You will heal, even if you cannot believe that now, just know that it is true. To feel pain after loss is normal. It proves that we are alive, human. But we can't stop living. We have to become stronger, while not shutting off our feelings for the hope of one day being healed and finding love and/or happiness again. Helping others through something we have experienced is a wonderful way to facilitate our healing and bring good out of something tragic.
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Rainbow

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Re: Information Regarding Coping/Dealing with Chronic Pain
« Reply #12 on: October 17, 2009, 01:35:04 »

http://www.familyresource.com/health/chronic-illness/what-is-chronic-pain-management-relief

What is Chronic Pain?

By: Dr R. T. Cochran

Pain is a universal human experience. We all know what it is like. Few of us, however, know enervating and debilitating chronic pain. What is it that distinguishes the disease chronic pain from the inevitable and sometimes incessant pain that we all endure? It is difficult to make a certain distinction. Unfortunately, there is as yet no adequate definition of the disease. The reasons for this are several, and they are worth exploring.

Chronic pain is a very protean illness. It has many faces. It may appear as fibromyalgia, back pain, tension headache, or any of themyriad other painful disorders. Thus, our attempt to define the illness is much like the proverbial blind men trying to describe the elephant. Each recognizes a part, none identify the whole. We can actually name the blind men. One is a rheumatologist who describes fibromyalgia. Another, an orthopedist, who describes a ruptured lumbar disc. A gynecologist describes chronic pelvic pain; a neurologist, tension headache; and a psychiatrist, depression. The list could be extended indefinitely. Every physician, specialist or generalist, encounters the syndrome of chronic pain. Each sees a piece of it. Few see the whole.

Let's compare chronic pain with cancer and infectious disease, for these, too, are very protean illnesses. There are many types of cancer, and they behave quite differently. There are many types of infectious disease. Some are caused by viruses, others by bacteria, and yet others by fungi. According to the type of organism, infections will show enormous variability in their clinical expressions. Nonetheless, we recognize that cancer and infection each represent a single coredisease. We know this because we can see, under the microscope, the nature of the illness. We cannot, however, see the nature of painfulness under the microscope. There is not as yet, nor will there likely be in the foreseeable future, a diagnostic test for pain. Nonetheless, there are ample reasons to presume that a state of chronic pain represents, like cancer and infection, a single core illness.

Most texts define chronic pain as that which persists beyond six months. That is certainly an inclusive and encompassing definition. Few would debate that pain of six months' duration constitutes chronic pain. The time value, however, is highly arbitrary, almost to the point of meaninglessness. Surely the patient who suffers inces- sant pain should not have to wait six months before being accorded a diagnosis!

Let's look at some specific examples. A muscular sprain or overuse injury usually resolves within a few days or weeks at the most. A more severe injury, such as occurs to the ligaments in an ankle sprain, may last several weeks or even a few months. Shingles usually lasts four to six weeks. A ruptured disc in the lumbar spine may cause persistent pain, but if the patient continues to hurt for anything approaching six months, surgery is warranted, and in that case recovery is usually achieved in a short while.

The time value of six months is much too long, but it is useful simply because it recognizes that almost any painful condition should resolve within a measurable time frame. This offers a new dimension to our definition of chronic pain is that which persists beyond the anticipated time of recovery. It begins when the patient should be getting better but isn't. This is admittedly a very subjective definition. The lay person will be annoyed by its imprecision, but every physician knows exactly what I am talking about.

Let's fast-forward to another idea, one which is the central theme of this book. Chronic pain, I will suggest, is the product of the mind, and it begins at that point in time when pain becomes a cerebral rather than a somatic experience. When pain persists longer than it should, beyond accountability, a variety of seemingly unrelated things happen, and they usually occur within a rather short interval. Appetite changes. Sleep becomes disordered and nonrestorative. Exhaustion and fatigue overwhelm. Memory is impaired, and the very act of thought disordered into persistent ruminations about pain. Mood is affected with fractiousness, irritability, and depression. All of these are a product of a mind in disarray, and they are the cardinal symptoms and identifiers of chronic pain. Now we can really get our teeth into a definition. Chronic pain is a state of pain characterized by destruction of the very architecture of fundamental existence. With that in mind, let's look at a few examples of what is and what is not chronic pain.

The migraine headache can be extraordinarily painful. As every migraineur (one who suffers migraine) knows, it can be a devastating experience, attended by disordered sleep, loss of appetite, and some- times profound changes in mood. These, certainly, are the symptoms of chronic pain, but in the migraineur they last but a few hours or a few days at the most. Migraine is a disease of intermittent painfulness. It is not chronic pain. That is a disorder of incessant painfulness (there are exceptions, but these will be addressed later). Rheumatoid arthritis is an inflammatory disease of the joints. It is a crippling and sometimes even mutilating disease, and it can be very painful, but it need not be chronic pain. Most rheumatoids live useful and effective lives. They do not want for sleep, energy, or good humor.

Shingles can be a dreadful disease. It generates severe pain that lasts for weeks. During that interval, the patient experiences all the symptoms of chronic pain. Sleep is disordered with frequent painful awakenings. Appetite is diminished. Food loses its flavor. Emotions are disordered with irritability and despondency. The architecture of a useful and happy existence is destroyed. Does this mean that the patient with shingles suffers chronic pain? Perhaps, but probably not—because although he may lose sleep, energy, and appetite, he does not lose hope. He can be told that his painful experience will be self-limited and that with time he will get well. Compare with fibromyalgia and tension headache. Victims of those disorders cannot be told that they will spontaneously recover. It is the lack of hope, perhaps more than anything else, that defines chronic pain.

Shingles, destructive though it is, is not chronic pain, but it may evolve into that disorder. Just as a muscular sprain may evolve into fibromyalgia, and migraine into tension headache, shingles may lead into chronic pain in the form of post-herpetic neuralgia. Perhaps in no other illness can the progression of acute into chronic pain be so clearly demarcated. It occurs at that point in time when the infection is arrested and the rash disappears, but the pain continues—when the patient should be getting better but isn't. This is also the point at which pain loses certain pathologic accountability. The nerves, so inflamed and dysfunctional during the acute interval, have regained their integrity. They show no abnormality to even the most discriminating tests of their structure and function, and yet they continue to generate a pain which will last a lifetime.

Let's compare pain, as I will do often in this book, with other experiences. That of grief is a good place to start. With the loss of a loved one, we mourn. We are saddened and tearful, sleep- deprived, anxious, and subject to strange imaginings and often a sense of guilt. These, it bears emphasis, are expected, even normal behaviors (just as the pain of shingles is an expected and normal behavior). Grief, like most pain, is typically a self-limited experience. With time, it goes away. Occasionally it persists though, and when grief lasts longer than it should (and again we are forced to meet an uncertain time frame), the experience of sadness is no longer just grief. It is depression, and that is a disease. Grief may evolve into depression just as shingles may evolve into post- herpetic neuralgia. The analogy is more than apt.

Pain begins in the body with corporal injury, usually a random and accountable event. When it persists beyond accountability, it becomes a mind-dominant experience associated with a stunning variety of behavioral effects. These are the symptoms of chronic pain, and it is their study, quite as much as that of pain itself, that will allow us some understanding of the disease. It is quite difficult, most of the time, to say exactly when chronic pain begins. We have but modest understanding of exactly how it happens, but we can see, with great clarity of vision if we but try, just why it happens.

Dr. Cochran uniquely incorporates the fields of neurology, internal medicine, and psychiatry in deriving insightful - sometimes, disturbing - yet hopeful conclusions for the chronic pain sufferer. He is the author of Understanding Chronic Pain.
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